Digital Economy4 July, 2008. BMA House
Paul Luff
Gordon Brown £100m into digital economy
Digital eceonomy
Energy Nanoscience Essential platform Securing he fuure
£46m (2008-9) standard – large (£10m)
types of projects - phd studentships (10-20 at a time; each one is 100 students – 400 total)
fund large centres (2-6 of them), around £20m each, possibly multi-institutional - call in mid-july
identify funamental areas key to future research capabiity in digital economy - transport - creative industries - healthcare - (finance) - (government) - (services)
develop networks of researchers to define how spend money - these clusters are for this
research clusters - innovative media for a digital economy (oxford) - e-Health+ (Manchester) - inclusive digital economy supporting olrder and disabled people (Dundee) - DIADEM (Queen Mary)
What’s the grand challenge?
IMDE - social technology systems - user-generated content - new forms of exchange and participation - new approaches and kinds of research activities - 3 areas
aim to see links across 3 themes, then feedback
build consortia for clusters
creative industries – sample issues - new economic models - ipr - trust, reputation and identity - blurring of boundaries - resource of atomisable content - cultural history of production - funding models (reactive, short term) o 3-4 year too slow for this area. Funding period must be shorter
Transport - sustainability and info - technologies to substitute for travel - multi-model and seamless - transititional communities - cult context, social criticism and urban planners (‘imagined futures’) - public engagement - methods: expts, demonstrations, unfocus groups
recent devels - phased future calls - range of funding models - july 2008-07-04 interdisciplinary and inter-institutional
EPSRC might want to spend a lot of this money v soon - definitely inter-institutional
push to inter-disciplinary research
strong involvement of social scientists
don't have to be big centres, but smaller projects
‘user-led’
involvement of industry
driven by problem on the ground
that’s why not theory of computer science, but applied - new business models
‘what is industry/business in health care?’
patients and carers
elderly is a strong area
deadlines for proposals - possibly December - must commit funds by March 2009
Resources - http://web.oerc.ox.ac.uk/research/digital-economgy - http://www.imde.crowdvine.com - http://digitaleconomies.tumblr.com o between a blog and wiki
3 cards (blue) - 3 grand challenges to innovative care - with partner - decide which 4 are main, from 6 - write these on green card - connect with another couple, 8 cards - decide what are 6 main challenges
Setting the Context: NHS Direct Shirley Large
Aims to provide expert health advice for homecare 36 call centres – 8m calls per year 3m visits a month NHS Direct Digital TV – 18.9m (85% penetration
Research imperatives - clinical - organizational - democratic
research priority areas - advice and referrals - long-term conditions - new media and multi-channel - public heath surveillance and response
how integrate with new media?
Emergency contraception pilot - aim: understand how to integrat multi-chanaal - social networking and im - reach popn groups that have a partic public health need - 19 Apri – 1 June – Health Info Advisors - delivered via applets o Bebo o Health centre eb at warwick uni o Nhs direct - (this was an advert) - 1,540 views - 661 IM chats - 446 (68%) NHS - 215 (32%) bebo - average chat 12mins 32 seconds - 94% female - 57% 16-25yrs - 13% under 16yrs - Reason for IM o 20% concern following intercourse wout cntractpin o 14% pregnancy o 10 failed contraction o 18 not worked - 62% of enquiries abut wider sexual health isse - 8% clinical symptoms - highest referral to NHS Direct - Questionnaire response 19% o 94% described chat as about right legngth o 85% found understand
ME: how did you establish demographic?
Bucks Shape 50+ Project: Health Connect Aviv Katz
Commissioned by oxford, Milton Keynes,
Citizen engagement aim
Older people from community - cabinet members, local council
identify key issues - HC not dealing with transport - HC poorly equipped with info about how to get to surgery - Lack of IT database - (rural community)
vision – travel info service
not to create a new website, but a vision for integration
e-Health Plus David Wallom Northwest Instittue for BioHealth Informatiocs, Manchester
Aims - healthcare usually too late in course of disease to make optimal solution - lacks personalization of info - digital eceonomy challnge: quickly assemble persuasive iformation from multiple sources, tailor to indiv and empower to make health choices
probs - lack of prev and early healthcare - poor/confusing info - digital challenge providing personalized halth info
from illness to wellness
wellbeing not just managing illness
situational awareness of rising child-bmi – Wirral, 3-yr olds from 1988-2004 - long term rise, since 1990s
gene association studies - processing info
poor choices through lack of available information - Klein, NEJM, 2006 – lipsuction – people will not know that the removal of surface fat does not reduce risk
How create system where can look at data
How make available?
Public good
How make sure that research on records see benefit of
Create federation rather than single database
Communities of best practice
Not single infrastructure
Beacon local health economies are ready to be connected, internally, towards t digital economy
Chain of health care prof with patient
Need more flexible relationship between patient and doctor
Personal healthcare system
Radical blogging: www.ehealthplus.org - push projects and collaborations
public engagement, miniposters, competitions, networking,
personalized health care
eDiamond - collab between health, industry and acadmia, to devel digital mammography improve diagnosis of breast cancer - create library of comparison images - access to many more radiographers - automate first pass - (did not succeed since NHS had already committed to another system)
My comments - Open source - Google Health - Prob with UGC - Establishing platforms as meaningful communities – not user generated content, but participant constituted platforms - Significant aim should be to give priority to rare/poorly funded conditions - Semantic web
Energy Balance Wristwatch - informs about choices you can make
Personal Health Avatar - second life - how create second life avatar to examine presentation of health care info - largest problem – how tell patient that may or may not see a doctor to be involved in a wellness culture - inegate and present through various devices – scale – into ownenvironment
relationship to creative media cluster - presentation, design, interface - medical training: health care evolves rapidly, presenting training without removing from workplace must get used to
next meeting - 16th July, Manchester - working towards first theme – personal devices for eHealth - connectivity between devices, simulation and presentation
advertising not good enough - ME: is there any study of which agencies are used for Health care advertising in the uk? Compare with marketing of pharmaceutical products to health care professionals.
Animal Agentz Mark Jones
www.animalagentz.com
children
phd at Great Ormond St Hospital
children go to website and learn skills
conditioning for subsequent interventions eg. vaccination
each animal has different skill
distraction cat
monkey – guided imagery
lion – cognitive behaviour therapy – saing positive things (for older child)
integrated on facebook, you tube, twitter,
ME: In what way is it on Facebook? How many users? What does it offer?
ADHD one possible app
IP - patented
social software –
you tube – 143 views
stumbleupon
twitter - getting community to advise
sharing
Examples John Luff
- user participation - BBC Health - Organised Wisdom (wiki) - PatientsLikeMe (also gather stats) - BrainTalk (1993) - The Health Care Blog - Second Life – ‘A second life on second life’ – ‘Heron Sanctuary’ – MS - HealthVault - Google Health
1000 people, 200 returned
ensuring that the technologies protect patients/participants/clinicians
ensuring information is secure against
non-disclosed interests
exploitiation
the authority of STS to guide people through peer consensus in the actions taken with their health
How do people share and access health information in STS communities? How do they constitute trust, privacy and knowledge systems and how can we inform this process?
How can we guide people?
How can people be empowered through guidance
Challenges and opportunities
What do we do to get there?
Comments
GROUP 1: EFFECTING DIGITAL TRANSFORMATIONS
Cost of missed opportunity Funding timelines should be longer than 3-5 yrs Access various funding mechanisms Venture capital in uk absent Charity funding – lottery Sustainability of funding model How does model permit alteration of research design? Manage as portfolio of products Project management team Academic inertia: Pressures in academia – how innovate with career paths (corporate swap with scientist) Institutional inertia: estab process for successful diffusion Link practice back to research Need ‘sand pit’ / action field to try in different labs Project funding portal needed Need to be bigger risk takers in research How export findings globally? Enough time for reflection?
GROUP 4: EFFECTING CHANGE IN BEHAVIOUR AND CULTURES
Too much info, not good Once try to provide info, what are consequences to doctor-patient relationship? Consequences to service provision Patient becomes an expert – what new demands? Fundamentally transform conventional relationship Consequences of having knowledge Change in citizenship How preserve idea that only clinicians are experts/gatekeepers
Questions & Answers What about people with diminished responsibility?
GROUP 2: SUPPORTING INDIVIDUALS & COMMUNITIES OF PRACTICE
Renegotiate meanings
GROUP 3: OWNERSHIP OF INFORMATION
Definitions Control over access Indiv control over info Gift relationship If more control over info, more willingness to share info Linking with banks How authenticate? Bebo, facebook, myspace not authenticated - sts too trivial, not critical to you as an indiv
GROUP 5: TRUST, KNOWLEDGE, PRIVACY
GROUP 6:
Concern about wiring well people to technology Structured information Pilot projects – quickly expedited Standards Constantly horizon scanning rather than prescribing problem Do not let technology drive agenda Acceptability, reliability, usability Near-to-the-user research Design with not for users Quick prototyping
Questions & Answers Sharing of information